Debunking 6 Common Myths About Lupus

In this article, we’ll address some of the most common myths about lupus, a chronic autoimmune disease affecting millions worldwide. Click here to learn more about what lupus is.

Despite there being over 1.5 million Americans living with Lupus and an estimated 5 million people affected worldwide, a 2019 Lupus Awareness Survey revealed that 63% of respondents had never heard or knew very little about the disease or its symptoms. This article aims to amend that by breaking down the widespread misconceptions surrounding lupus.

*Disclaimer:

The information provided in this article is for general informational purposes only and is not intended as medical advice. It should not be used as a substitute for professional diagnosis, treatment, or advice from a qualified healthcare provider. Reliance on any information provided in this article is solely at your own risk.

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While it’s true that 9 out of 10 adults diagnosed with lupus are women, men, children, and teenagers can also be affected. Men with lupus often experience more severe complications, such as kidney issues and inflammation of the lining around organs.

Lupus is not a one-size-fits-all disease. There are several types of lupus, including:

1. Systemic Lupus Erythematosus (SLE, ~70% of patients) - The most common form, affecting multiple organs and systems.
2. Cutaneous Lupus (CLE, ~10%) - Affects the skin, causing rashes, sores, and scarring.
3. Drug-Induced Lupus (~10%) - Caused by certain medications typically goes away once the medication is stopped.
4. Neonatal Lupus - A rare condition affecting newborns of mothers with lupus.

Lupus is not contagious. It is an autoimmune disease, not an infection. Lupus cannot be transmitted through any form of physical or sexual contact, unlike sexually transmitted diseases (STDs) such as HIV/AIDS.

In STDs like HIV/AIDS, patients have an underactive immune system. The body is unresponsive and less able to fight infections. In contrast, lupus is the opposite: the immune system is overactive. Instead of only attacking the harmful invaders, the body attacks its healthy tissues.

Lesions and rashes may appear contagious, but they are not. They are simply a visible sign of the immune system turning against the body. While researchers haven’t determined the direct cause of lupus, they suspect a combination of genetic, hormonal, and environmental factors.

Lupus is not a type of cancer. Cancer is a disease where cell growth is out of control. However, lupus is a disease where the body’s immune system mistakenly attacks its tissues and organs.

Although some people with lupus use chemotherapy drugs (commonly used in cancer treatment), the goal is different: in lupus patients, chemotherapy suppresses the overactive immune system and reduces inflammation.

There is no single test to diagnose lupus. The symptoms can be unclear and change as they mimic many other illnesses, which is why lupus is known as the “Great Imitator.” On average, it takes around six years from the onset of symptoms to receive an accurate diagnosis. A staggering 63% of people with lupus get misdiagnosed, and 55% report seeing four or more healthcare providers before finally being diagnosed correctly.

While there is no cure for lupus, it is a manageable condition. With the correct medications, regular checkups, and lifestyle changes, many people with lupus can lead long, active, and healthy lives. Depending on the severity and symptoms, some treatment examples doctors may prescribe:

• NSAIDs (e.g., ibuprofen) – To relieve pain and inflammation.

• Corticosteroids (e.g., prednisone) – To quickly control inflammation during flare-ups.

• Antimalarials (e.g., hydroxychloroquine/Plaquenil) – To manage skin and joint symptoms.

• Immunosuppressants (e.g., azathioprine, methotrexate) – To prevent the immune system from attacking healthy tissues.

In addition to medication, lifestyle changes, such as stress management, sun protection, regular exercise, and a balanced diet, can significantly reduce flare-ups and improve quality of life.

Lupus is a complex disease that’s often misunderstood. By debunking these myths, we hope to spread awareness, encourage early diagnosis, and help reduce the stigma for those with lupus. It is important to remember that lupus is not rare, not contagious, and not untreatable, and most importantly, people with lupus are not alone.

Lupus facts and statistics | Lupus Foundation of America

Myths and Facts About Lupus | Rheumatology Center of New Jersey

What causes lupus? | Lupus Foundation of America

2019 Lupus Awareness Survey Summary | Lupus Foundation of America