Introduction



Lupus doesn’t discriminate between age. However, symptoms can differ from age group to age group. Parents and guardians of children and teens with lupus should be mindful of the symptoms and how to support their children through treatment and school life to make regulation of the disorder easier.



Before you read...



*Disclaimer:

The information provided in this article is for general informational purposes only and is not intended as medical advice. It should not be used as a substitute for professional diagnosis, treatment, or advice from a qualified healthcare provider. Reliance on any information provided in this article is solely at your own risk.



See a word you don't understand? Find it in our glossary.





What is Pediatric Lupus?



Though rare, lupus, usually systemic lupus erythematosus (SLE), can be diagnosed in children. According to Sangeeta Sule, the division director of pediatric rheumatology at Children's National Hospital in Washington, DC, about 10 to 20% of all lupus patients are children. Pediatric lupus is also called childhood-onset lupus and juvenile-onset lupus.


Just like adults with lupus, these children have an immune system that produces harmful autoantibodies that attack the body. They may also experience:


• Rashes, specifically the signature “butterfly” rash that extends across your child’s cheeks • and the bridge of their nose

• Fatigue, headaches, and fevers

• Hair and weight loss

• Joint pain


As with lupus in adults, pediatric lupus can flare, which is a sudden worsening of symptoms. Flare-ups aren’t always predictable. The important thing is to check in regularly with a doctor or healthcare provider to ensure your child has a happy childhood.





Key Differences in Symptoms



Though pediatric lupus may share many similar symptoms with the adult manifestation, children with lupus tend to be hit harder, with more severe and abrupt damage. Because children develop lupus earlier, they have more years to compound and accrue this damage in their organs and vital systems, significantly impairing their health.


Parents and guardians may have to look for other symptoms that do not occur as often or as severely in the adult manifestation of lupus, such as:


Disturbance of Brain Function: Compared to adults, children are more likely to present abrupt central nervous system manifestations, which can severely affect brain function. They may have headaches, gaps in their memory, personality changes, seizures, and difficulty breathing.


Severe Kidney Damage: Children with lupus are more likely to have kidney involvement than adults. They may have swelling around their feet, legs, and eyelids due to kidney inflammation with dark urine.


Hematologic (blood) Issues: Children with lupus tend to present with increased complications with their blood compared to adults. This could be blood clotting, particularly in the child’s legs, or anemia. Signs of blood clotting include intense pain, swelling, and discoloration/redness. On the other hand, signs of anemia include loss of color, especially if the tips of your child’s toes or fingers turn blue or white, shortness of breath, fatigue, and dizziness.


Steroid-Induced Complications: Due to how differently symptoms manifest in children compared to adults, pediatric patients may need to be prescribed higher doses of steroids, such as corticosteroids, to manage inflammation and other damage. While this can certainly help your child, it also leaves them at risk of developing complications such as diabetes, avascular necrosis, and osteoporosis. Your child may also have stunted height compared to their peers.





How to Support Your Child



Your doctor or healthcare provider will tell you how to help your child and prescribe them the necessary medication or supplements. However, as a parent or guardian, there are other things you can do to help your child navigate life, such as:


• Tracking symptoms and flare-up triggers

• Regularly checking in with your child and their healthcare provider

• Encouraging your child to talk to you or a counselor for questions, concerns, or a simple listening ear

• Ensuring that your child wears sunscreen and protective clothing so that they don’t trigger their photosensitivity

• Being open and honest with your child about their condition. Help them understand their condition in terms they can understand and have them take a more active role in their healthcare as they grow older.


The long-term outlook for your child depends on the severity of their disorder, when they start treatment, and any arising complications or damage. Regardless, with treatment and unwavering support, your child can live a happy childhood and enjoy their hobbies, social life, and academic career just like their peers.





Conclusion



Pediatric lupus is lupus that occurs in children and teens. Though symptoms are generally similar to those in adults, they may be more severe and present more abruptly. Parents and guardians should support their child and help them navigate life with pediatric lupus to ensure a healthy, happy childhood.





Sources