Introduction



Anyone can develop lupus. However, studies show that women of color, especially within the Asian American and Pacific Islander (AAPI) community, are more likely to be affected by it. Being diagnosed with lupus can already lead to complications, but as an Asian American or Pacific Islander, various other factors increase this disproportionate effect or cause further undesirable effects.



Before you read...



*Disclaimer:

The information provided in this article is for general informational purposes only and is not intended as medical advice. It should not be used as a substitute for professional diagnosis, treatment, or advice from a qualified healthcare provider. Reliance on any information provided in this article is solely at your own risk.



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Factors Affecting AAPI Patients with Lupus



Socioeconomic Status: 11% of Asian Americans and 17% of Pacific Islanders in the U.S. live in poverty. Of these percentages, those with lupus may not be able to afford proper care or quality food. Additionally, since a lower socioeconomic status may lead to increased stress, lupus flare ups may increase in severity and frequency.


Education: Asian Americans or Pacific Islanders lupus patients with a lack of formal education and lower health literacy may have a delayed or incorrect diagnosis. Additionally, a study found that lower health literacy can lead to worsened lupus symptoms, which is a problem since many Asian Americans and Pacific Islanders do not have access to formal education.


Environment: Asian and Pacific Islander countries are typically hot with a lot of sunlight. This can exacerbate lupus symptoms and flare ups, as light sensitivity is a typical symptom of lupus.


Cultural Pressure: In AAPI cultures, discussing illness is frowned upon due to its “taboo” and “inappropriate” nature. As such, an Asian American or Pacific Islander patient may not seek proper care or alert someone of their condition due to cultural bias against illness. In an interview with Eliza Ngan-Dittgen, the program supervisor for the Lupus Asian Network, she stated that “I don’t want to be seen as nagging and causing trouble [because of my health issues].”





Conclusion



Factors such as socioeconomic status, education, environment, and culture can all disproportionately affect Asian American and Pacific Islander patients with lupus.





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